A betegség és a szociodemográfiai háttér hatása a cerebralis bénulásban szenvedő gyermekek életminőségére = The impact of disease and sociodemographic background on children suffering from cerebral palsy

Fejes, Melinda and Varga, Beatrix and Ohmachtné Hollódy, Katalin (2021) A betegség és a szociodemográfiai háttér hatása a cerebralis bénulásban szenvedő gyermekek életminőségére = The impact of disease and sociodemographic background on children suffering from cerebral palsy. ORVOSI HETILAP, 162 (7). pp. 269-279. ISSN 0030-6002

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Abstract

Introduction: Self-reported health-related quality of life (HRQoL) of 99 children (8-18 years) with cerebral palsy (CP) was assessed and compared with 237, age-matched healthy control children from the general population. Objective: The aim was to find out the opinions of children with CP about their health status and social condition. Method: Assessment of quality of life questionnaire was carried out. Measurements of disease-specific and sociodemographic variables were done. Results: Children with CP and their parents rated HRQoL poorer than their counterparts. Our results show that female sex, worse gross motor function and comorbidities (epilepsy, incontinence and intellectual impairment) had negative impact. The parental opinion was suitable as proxy report because of the measured strength of the correlation. Among the types of CP, interestingly, children with unilateral spastic CP had the poorest HRQoL. They were likely to feel a functional difference between the two sides of the body. Intellectual disability occurred in more than half of our patient population. Among their siblings, mental illness is 5.7 times more common. The family environment was much more disadvantageous than in the case of healthy children. As our study shows, lower education, inactive status in the labour market and single-parent family occurred at a much higher rate and worsened the quality of life. Conclusion: Quality of life of children with disability was influenced by both the sociodemographic background and the disease.

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